You are currently viewing an archived version of this article. To reduce our digital footprint, we archive all articles after three months on site, compressing images to lighten page weight and lessen our impact on the world. Our full digital archive is accessible to boom saloon members, who directly enable our community projects and receive a series of member perks in thanks. To join them and further support our work, please become a member here. Not ready to be member yet? To make a one time donation, please click here
boom saloon’s dementia reading list
“A series of dementia focussed books – many from those with lived experience of dementia – to encourage us all to educate and inform ourselves on this important conversation”
words – rachel arthur
Over 850,000 people in the UK are living with dementia; this figure is projected to rise to 1.6 million by 2040. As dementia’s prevalence grows apace, many of us find ourselves unequipped to deal with the effects of this until it is too late – only learning how this collective term can affect our memories, thoughts and communication skills when it touches us directly. In cases of rapid progression, this leaves little time for education and understanding.
Amidst a landscape of promises of a cure, sensationalist headlines and inaccessible medical reports, it can prove challenging to source understandable, reliable information. To help combat this, we’re dedicating this month’s Add to Queue to a series of dementia focussed books – many from those with lived experience of dementia – to encourage us all to educate and inform ourselves on this important conversation.
01_Dementia: The one-stop guide by June Andrews
Practical and no-nonsense, this book shares clear and informative insights on every aspect of the dementia journey – from recognising symptoms and getting help to treatment options, maintaining health, becoming a carer and managing financially.
02_What I wish people knew about dementia by Wendy Campbell
Divided into six sections – Senses, Relationships, Communication, Environment, Emotion and Attitude – this book acts as a kind of how-to for those living with dementia and the family and friends supporting them. Focussing on particular difficulties faced day to day and how to overcome them, Campbell’s guide encourages us all to face up to the realities of dementia whilst living with hope.
03_The 36 hour day by Nancy L. Mace and Peter V. Rabbins
At once authoritative and compassionate, this much trusted resource is authored by experts with decades of experience caring for individuals with memory loss, Alzheimer’s and other dementias. Informed by recent research and filled with useful takeaways, The 36 Hour Day covers everything from the causes of dementia to caring for those in the later stages of their dementia journey.
04_Talking Sense: Living with Sensory Changes and Dementia by Agnes Houston
Formed of chapters dedicated to each of our five senses, this unique book provides invaluable insights for those looking to support people living with sensory challenges. Featuring a culmination of more than a decade of research by Houston after she was diagnosed with younger onset dementia in 2006, Talking Sense explores the impact of ageing and dementia on vision, hearing, taste and smell, position sense and balance, and touch.
05_Dear Alzheimer’s: A Diary of Living with Dementia by Keith Oliver
Keith Oliver was diagnosed with Alzheimer’s disease when he was 55; as a teacher, his days had always been filled with writing, which he took to again to help him “deal with the hard days.” Dear Alzheimer’s shares Oliver’s story via diary format, interspersed with letters to Alzheimer’s itself.
06_Sizzling Bacon by A. F. Scott
An excellently penned account of living with dementia for children, Sizzling Bacon breaks down a number of common symptoms of the early stages of dementia in a realistic yet understandable manner. Touching and heartfelt, the story focuses on the love of a family undertaking the dementia journey and all that can still be celebrated and achieved.
A note: Each month, we update our site as part of our efforts to reduce the environmental impact of our digital estate. The global emissions from the digital industry are on a par with those from the aviation industry, at almost 2% of total global emissions. What’s worse, this is increasing year on year. In an effort to lessen our impact, each month we compress and archive previous features and update our site with new content. Throughout the month, our current features are available to all to enjoy; our full digital archive is accessible to boom saloon members, in thanks for their support to use creativity to inspire and empower those facing challenges. Support our work and become a member by clicking here.